Monday, December 30, 2013

Struggles

Let's be real…….there are so many struggles that those with lupus struggle with that it would take hours to write about them all. There are some days that I can handle the pain, sometimes it is too much. Most days I can handle the psychological struggle that comes with having lupus, but there are some days that I struggle. Here lately, the thing that I have struggled with the most is my weight gain.

Since beginning a new medication last spring, I have gained 35-40 lbs. When I first began the medication, I noticed a small change in my weight and I asked my doctor about it. She said that it was not a side effect (it is a fairy new med). Now, 8 months later and 38 lbs later there are articles popping up everywhere that it is a major side effect of the medication. What?!?!?!?!?!?!?!?!?!?!?!?!

I am the type of person who is very weight conscious. I have tried for about a year and a half now to get my body in the shape that it needs to be in for a person of my height. I was there for about 6 months and then I began taking this new medication. I go to the doctor Friday, and I am hoping to discuss options with her on what my next step needs to be concerning this side effect.

With everything set aside, the medicine is working. So, do I deal with the weight gain, or do I try something different that doesn't have weight gain as a side effect? I don't feel good about myself with the weight gain, but I don't feel good without the medication. It is a catch 22. I would love to hear what you would do!!!!


~Tiffany~

Thursday, December 26, 2013

Start Spreading the News

I'm leaving today..........Can anybody guess where I am headed? Yep, NYC!!!!!! OMG.....I cannot tell you how much this means to me for the hubs and I to get to go to our favorite city in the world!!!! With him being in school three hours away our time together is few and far between. We were going to bring Twinkle Toes, but she decided that she didn't want to walk....bawaha!!!! Lazy bum!!!!!

Something that I am not looking forward to....it's snowing, and I am worried what this will do to my lupus. Yes, it is cold in Alabama, but not with the moisture that comes with snow. How am I am preparing? Well, I am taking Aleve as a precaution, and I'm prepared to take lots of hot baths/showers, and layer up. The only problem I foresee is the walking in the snow. It could be a problem, but if that's the case, we have an unlimited subway pass and we will just ride more. I am very optimistic that this is going to be a great trip!!!! I may even make a stop by the lupus foundation and see if I can plan some volunteer work for the future. 

I know I have taken close to a 6 month hiatus from blogging. The truth being that I have many life changes. The hubs moved three hours away to go to school, leaving Twinkle Toes to me. I have a new respect for single mothers. They are heroes!!! In about October, the people we rented our house from decided that they wanted to sell it and gave us 30 days. Do you know how hard it is to find a place to rent, pack and move in 30 days....by yourself? Long story short, my parents have a finished basement and that is where I have ended up. So, I went from a 2500 sq ft house, with two garages to a 1500 sq ft glorified dorm room. It is much like a studio apartment. Twinkle Toes took my sister's bedroom upstairs and luckily, my king bedroom furniture fit downstairs!!!! Everything else is in storage. The good news......no rent!!!!!!! 

So, there you have it lupies....my life in a nut shell.... Until next time....


~Tiffany......just a little Lupie for Life~